Sunday, September 27, 2015

Here We Go Again...Kind Of


Splotchy face due to acne and eczema
As I mentioned in my previous post, I knew we were dealing with food allergies again when Cecilia was only a week old, but it took me 2.5 months to really get serious about them.  Seeing blood in your child's poop is a little scary.  Also, seeing unexplained hives on your child is no fun either.

Most of you know that I take lots of pictures of my girls.  I started documenting Cecilia's skin issues pretty early on.  I had often wondered if her skin was merely newborn acne and her erythema toxicum neonatorum, also known as a "newborn rash", or was it eczema and hives?  I now know that it was eczema and hives with some newborn acne thrown in.  Her pediatrician tried to tell me the hives were just part of the newborn rash, but when they continued to crop up well past the newborn stage, I was suspicious.
Hives I noticed after her bath, though I had been using
 the same body wash on her for months
More hives on her back
I removed all top 8 allergens from my diet, so that means I did without milk, soy, wheat, eggs, peanuts, tree nuts, fish, and shellfish.  I also decided to give up oats and tomatoes since Genevieve had issues with them.  I didn't want to let go of chocolate, though I'm not a huge fan of it, but it seemed that it caused Cecilia to reflux pretty badly, just like her big sister.  After grocery shopping for my old stand by foods, the diet was a little easier to handle.  I ate gluten free brown rice cereal with fruit and coconut milk.  I ate various meats, rice, veggies, fruits, quinoa, and some other replacement items (like top 8 free snack bars and cookies by Enjoy Life).

One morning I ate a gluten free waffle with Sunbutter and banana for breakfast, and by that evening I had a gassy baby who kept spitting up.  Then she had a mucousy poop that smelled like acid.  Uh oh. What was it?  The Sunbutter?  Something in the waffle?  I had suspected flaxseed when I used it in some cookies as an egg replacer, so maybe that was it.  I hate all of the detective work! The next morning, Cecilia had two more disgusting diapers.  I have pictures if anyone wants to see, but I will spare you by not posting them. Do you know what it's like to be afraid to eat and paranoid that everything is going to hurt your baby? It's pretty miserable.

By the time Cecilia was around 5 months old, I felt as though I hadn't figured much out.  Her symptoms were more difficult to read than Genevieve's, and I was having trouble connecting the dots.  I suspected rice and corn, so I decided to eliminate them.  Not too long later I thought, "Nah.  It can't be rice."  I added it back in.  One day I had rice cereal for breakfast, two cookies made with rice flour, and rice cereal for dinner (busy day).  That night, I had a miserable baby with disgusting poops the following morning.  I went and looked at the ingredients of the gluten free waffles I had eaten that produced similar stools from Cecilia, and there were about 3 or 4 different rice ingredients including rice flour and rice bran.  I guess it could be rice.

We also continued to deal with skin issues, and I was having trouble linking her eczema outbreaks to anything in particular.  I really should have kept a more thorough log, but I struggled to do anything other than taking care of the girls.




At one point I even began to suspect garlic but again thought that was silly.  I tried to eliminate it, but it is in so many things.  One day, I shared some roasted potatoes with Cecilia.  They had a little salt, pepper, and garlic powder on them.  I actually wiped one off and gave it to her to eat.  Within seconds of eating it, she had a tiny hive on her face.  Maybe I wasn't crazy to suspect garlic.  The next morning, I made more potatoes cooked only in olive oil.  No hives.  Great.  It's probably the garlic, I thought.  Do you know how much stuff has garlic?!
Tiny face hive
In an effort to shorten this post, I will condense my detective work.  At nine months, Cecilia had skin prick allergy testing done.  They numbered her little back, placed food/animal serum at each number, and then scratched her skin.  After about 15 minutes, they read the results.  The large hive in the picture is histamine.  They are looking for the other ones to be as big or bigger for a positive result, however, according to my research, hives are often much smaller in children under age one.  The results must be interpreted a little differently, which I don't think happened for Cecilia.  It's hard to see from my pictures, but she received a weak positive result for garlic and rice.  I think a few others looked positive as well (avocado, soy, wheat), but they weren't according to the test.

White dot = histamine
Blue dot = rice
Orange dot = garlic



I continued to avoid the suspected foods to give myself time to adjust to a garlic and rice free lifestyle.  Once I got to a place of relative comfort, I would start adding back foods to test for a reaction. I added a little onion powder to some sweet potatoes, and Cecilia started developing a hivey rash on her chin and neck.  I gave her plain sweet potatoes the next morning, and there was no rash. Onions and garlic are related, so it's no surprise that she may have issues with onions too. Okay, onions are in even more things than garlic!  The hard part is that food labels don't have to list garlic or onions, and when you contact companies to find out if their "spices" and "natural flavors" contain either of these two, they can tell you that it's a trade secret.   

Hives/eczema on her chin and neck after eating sweet potatoes w/ onion powder

Another view that is apparently really hard to see because it's a phone pic
Two weeks after allergy testing, this happened.  Guess what caused it?  Peaches.  We gave her Benadryl and put her in the bath.

Hives on her face, neck, torso, arms, and legs
She kept rubbing her eyes in the bath

The next morning, this was my poor baby. 
Eczema flare
Genevieve never had a reaction this bad, and Genevieve never had eczema as a baby.  This was new territory for me.  G did get similar hives when she ate eggs, but they never progressed beyond around her mouth and some on her torso.  This was a bit scary for me.  I do feel pretty confident that I need not worry about anaphylaxis, but I can't be 100% certain.  

Cecilia never spits up anymore, unless she is reacting to something.  At that point, it's usually the first sign.  It's typically pools of spit up throughout the day as well as lots of silent reflux (acid that comes up but is swallowed back down).  

spit up all over a shirt that was on the ground
Now that Cecilia is one and is at a relatively stable place with her allergies/symptoms, I am doing food trials.  I started with dairy because I was never really sure it was an issue.  So far, so good.  She does have a few tiny patches of eczema on her torso that I don't think were there before I introduced dairy into our diets, but for now, I am just keeping an eye on them.  I have seen no other symptoms, so that gives me much hope.  I think next, I will trial eggs and then wheat.  Wish me luck!!  Here's to hoping that I don't over indulge in these once forbidden foods and gain 15 pounds in 6 weeks like I did when Genevieve grew out of her allergies.






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